Thursday, October 10, 2013

pumpkins + mary


yesterday was such a beautiful day. we decided to take advantage of it and hit the pumpkin patch. it was definitely the right move because the rains and dark clouds came rolling in today in full force. hello pacific northwest chaotic weather. gorgeous one day, dark and gloomy the next. yep, fall is officially here.


she was the leader through the corn maze. as it has been the last couple of years, this annual event is a significant one for me. i will never get tired of looking for the perfect pumpkins, of doing the rubber ducky races, of walking aimlessly through the corn maze. one of my favorite things to do is follow her on paths and watch her decide which way she is going to go. i hope beyond hope that i have endless years to watch her decide which way she is going to go on the various paths she will walk down. through all of her twists and turns, i will always support and cheer her on, always close enough to help when she asks which way i think she should go or to hear her say "momma, momma, this way! this way! follow me!". i will always happily do so, there is no one else i would rather follow.

our trip marks another fall. one more fall. mine to have. mine to keep. mine to remember. mine to be so very thankful for.

i am also thankful for my friend mary, a fellow melanoma warrior in wisconsin. mary has a chest x-ray on friday for her check-up appointment and so we are keeping our fingers and toes crossed that the x-ray comes back clean and the black beast is nowhere to be seen. so please send your prayers, mojo, and good vibes to mary for clean results with nothing to worry about. thank you.

i hope that you all have a great weekend. ours is going to include: breakie with one of my favorite high school friends at my favorite breakfast place (double win for me) + not going into the office (if i could say that i wouldn't be working at all that would be even better right? right. i so wish that i could say that.) + two campout nights with popcorn and a project runway catch up session + getting treats ready for malena's classmates for her first halloween party at a friend's house (she is super excited, she has been counting the days all week) + girls time with our besties on saturday afternoon + swim lessons + a visit from mema joann and papa james + sleep + sleep + more sleep + football + putting out our fall decorations + more sleep.

take good care of yourselves peeps, make the most of it. xo
ps) kerry -- i cut the list down for you;) xo

Wednesday, October 9, 2013

m&b + be brave

"[a] genuine tattoo.... tells a story.  i like stories and tattoos, no matter how well done, and if they don't tell a story that involves you emotionally, then they're just there for decoration, then they're not a valid tattoo.  there has to be some emotional appeal or they're not, to my way of thinking, a real tattoo.  it tells people what you are and what you believe in,
so there's no mistakes."
(leo, tattooist, 1993, quoted in margo demello, Bodies of Inscription, 2000)


so this happened last night.

i had never planned on getting a tattoo, it was never on my bucket list. but after my last round of scans, i decided that i wanted one and i knew what i wanted the design to be. i wanted something visual to show that i always carry the two of them with me. i love it. it seems like it was always meant to be on my wrist. it seems like it just took longer than it should have to get there.

my friend christina came with me when i booked the appointment and she rallied back to see it all go down and was the official photographer. i tried my best to convince her and barrett to get one too, but as you can probably guess, they didn't take me up on that offer.



my last picture of my wrist without a tattoo.
getting my wrist prepped for action.
getting ready for the needles to do their thing.
my sister had planned to get a tattoo with me, but when my appointment had to be scheduled on a tuesday night (she lives 5 hours away) that plan didn't work out. but after my tattoo was done, barrett sent her a picture of mine, and she surprised the hell out of me by sending this one back.

she got a tattoo yesterday right before the hour that i got mine. how awesome is that? i know,  pretty awesome. hers is in the same spot as mine. when she posted hers, she said "my new 'be brave' tattoo. if my sister can be brave then i can too. #mysisteristhebest" i could not agree more. my sister is the best. amazing that she has my motto on her wrist. love it.

i always carry them with me.

i have always known that.

now others can as well.

xo


Monday, October 7, 2013

one for today

"those who love you are not fooled by mistakes
you have made or dark images you hold about yourself.
they remember your beauty when you feel ugly;
your wholeness when you are broken;
your innocence when you feel guilty;
and your purpose when you are confused."
(alan cohen)
 
enjoy your tuesdays peeps. xoxo

Sunday, October 6, 2013

you will never look at pink the same again

as you know from reading my blog, i think stories are so important. i really believe that sharing the perspectives of those who lives are intwined with cancer can give valuable insight into what it feels like to share your life with cancer. the big and small ways that it can take hold, and make even the simplest tasks sometimes unbearable. liking walking down the halloween aisle at target with your daughter and just about losing it with tears because you are so incredibly anxious about what your life will look like on halloween, one day after you get scan results. like taking in the summer yard decorations with your husband and just about losing it with tears because you wonder if you will be here to bring the decorations back out with him next summer. both of which happened to me today in the space of about four hours. but these days are tough, so it is to be expected as each second of this month takes me closer to those results.

i met my friend jenny at the retreat i went to in june. after i shared a bit of my story (surprised she could even understand me because i am pretty sure that i was blubbering crocodile tears), she came up to me to share that we had something in common. cancer. she shared some of her story with breast cancer and we talked about many of the things that we unfortunately have in common. but we also talked about many of things that we fortunately have in common - great husbands and great kids.

so i want to share jenny's latest blog with you (of course with her permission). i think that it is so important to share her words, because it will give you insight into how one woman looks at the month of october when pink seems to be everywhere you look. i know that not everyone who has been affected by breast cancer feels the same as jenny. but i also know others who have been affected by breast cancer and do feel the same as jenny. even if it was only jenny that felt this way, it is her story and that makes it incredibly important to me. i think that you will feel the same.

"Dear Miss Martha – I don’t want a month, I want a cure


Ah, October. The month that I, as a Phoenician, look forward to every year. It’s typically the time that temperatures are finally under 100 degrees and I can finally walk outside again without risk of heat stroke. I crank my air conditioner to 70 degrees, just so that I can bundle under blankets, order a pumpkin spiced latte, and post a picture to instagram to feel that I somehow have something in common with all my east coast friends taking pictures of red leaves, scarves, and pumpkin patches.



When I crawl out from all my blankets, put my shorts and flip flops back on and step outside into the Phoenix fall world, I immediately feel assaulted by the blanket of well intentioned people wearing head to toe pink. Pale pink, blush pink, and neon pink. Doesn’t matter the shade, it’s just an assault to my eyes. October is no longer the month that ushers in fall, it’s the month that every grocery store looks like it came directly from the set of the Steel Magnolias movie when Julia Roberts got married in a sea of pink Pepto Bismol.
The phone calls come pouring in from telemarketers and neighbors trying to collect money for their organization of choice or another 3 Day Walk. Because who do you call when you want money to fight cancer? That’s right, you call a person who has or has had cancer, because they surely want a cure, right?
I was doing ok with the first couple of days of October until yesterday.
My youngest daughter, Sam, and I were headed out for a day of errands. Her favorite place in the world is Trader Joes. I knew if I promised her a trip to Trader Joes, then I could get away with going to two or possibly three other places on my list first.



We ran into a supermarket to get contact lens solution and fabric softener. As usual, more items appeared in the cart. Toy Story bandaids, a flyswatter, and a butterfly net were all items that Sam thought we needed. I finally convinced Sam that we could head to Trader Joe’s as soon as she was finished, and just like that, she pushed the grocery cart as fast as she could to checkout aisle number four. As Sam was unloading the cart, the checkout lady and I exchanged pleasantries. I noticed her name was Martha on her red name tag. She was in her late 50s or early 60s and covered in head to toe neon pink. She had pink glitter eyeshadow and bobbing pink antennas on her head band. Martha was really taken with Sam and her blonde curls and had a beaming smile as she watched Sam proudly place a shopping divider stick between the our groceries and the next gentleman in line buying condoms and cantaloupe. ‘A new trend perhaps?’ popped through my sarcastic, constantly moving mind.
As Martha hit a button on the cash register to tally up my groceries, she enthusiastically asked, “Would you like to donate one dollar to fight breast cancer?” I smiled at Martha, and politely stated, “No, thank you. Not today.” And she looked over at Sam, and stated, “It’s just a dollar. You should want to donate just to make sure that pretty daughter of yours doesn’t get cancer! You wouldn’t want that now would you?”
I took a deep breath and I was consciously trying to hide my 87% nonverbal communication. I feared my facial expression was probably telling her where to shove her headband antennae. I smiled, and said, “I have given more to breast cancer than you can imagine Miss Martha. But you are right about one thing. I don’t want Sam to get cancer.” I quickly ushered Sam to the side of the cart where she started climbing on it like a jungle gym, and I nervously loaded the last bag into the cart in hopes to escape the wrath of pink Martha.
As I climbed into the car, I found myself wishing I could have shared my heart with her. This is what I would have liked to have said.
Dear Miss Martha,
You are a sweet, kind lady. I am certain you are a lovely person and a doting grandma to many precious little kids. You probably bake the best chocolate chip cookies and host the best sleepovers. But right now, I’m certain if you knew me or my story, you would probably eat that obnoxious pink glittered antennae ball sitting on top of your head right now.
Please don’t take offense to what I have to say, but I really want you to see how your few simple words were hurtful. You see, I really hate pink. I hate pink ribbons. I hate running races where “survivors” are singled out in a special pink shirt. I hate how family members wear pink badges on their backs with the names and pictures of their moms, daughters, friends, and even sons who were robbed of their story and life because of cancer. I hate standing behind those surviving family members and feeling a rush of guilt for having more time with my husband and kids. That feeling rushes to my lungs so quickly that I wonder if I will be physically able to take a deep breath without bursting into tears. And let’s not even begin to discuss the pink jewelry. I could line my walls with all of the pink necklaces and bracelets I have received over the past 9 years. Miss Martha, if you want you could come by my house and I am sure I could contribute to your pink costume with my dusty box of cancer fighting treasures.
But Martha, breast cancer has become a money making business. Do you know how much of that dollar you are wanting me to donate is going directly to cancer research? I would suppose less than 15%. And that might be a high estimation. Many organizations, including Susan G. Komen, give very little money to research. They give a higher percentage of money to salaries, and that is pathetic. And the monies going to current research isn’t even going to the more aggressive cancer types that I and others have been unfortunate to encounter.
Martha, my prayer is that you and Samantha never have to have your breasts removed. I pray that you both are able to keep that part of your body that contribute to you feeling unique, beautiful, and feminine. I pray that you don’t catch a glimpse of scars in the mirror and ever let your mind wander questioning your value or beauty as a woman. You see, my breasts are removed. Gone. I imagine they are sitting somewhere on a shelf, in a dusty chemistry lab jar with a pink tombstone label or a giant pink, boobie cancer filled landfill.
So I don’t need to wear a pink shirt to remind me that I had cancer. I just have to look down and see my chest, complete with scars that would actually make a relatively creative tic-tac-toe board. I have a constant daily reminder. I don’t need Pink October to remind me that breast cancer is an issue.
So if you want to do something for cancer Miss Martha, please save your pennies from purchasing all your pink gear. Save your money from purchasing pink (or any other color) cancer ribbons. And save your time from posting your bra color to social media sites. Geez – don’t get me started on your dang bra colors. Who flipping cares? I lost my breasts. How does the fact that you are wearing a lacy purple bra help those of us fighting cancer?
Instead of donating to a breast cancer money making machine, consider giving your money and time directly to a person battling the disease. Here are some of my suggestions:
Make a meal or better yet start a community wide calendar to ensure they have meals provided to them and their families for 3-4 days a week.
Don’t cook? No worries, buy a gift card to their favorite grocery store or restaurant. Many stores provide home delivery and they can order food that will be dropped off on their doorstep.
Bring take out over with a funny movie. Laugh and talk about funny things and things your friend would like to do or learn how to do after their journey with cancer treatment is complete. Make a pact to have times where cancer can’t be discussed.
Make a homemade blanket.
Make a mixed tape. I know I’m dating myself here, but you know what I mean. Arrange and share an upbeat play mix of songs that help your friend smile or provide comfort while waiting for hours at hospitals, oncology offices, or in the chemo lounge.
Make a chemotherapy basket. Fill the basket with items needed during their course of treatment. Mouth candies, mouth wash, blankets, funny books and movies, etc. There are many websites available in google land with great ideas for items to include during chemo and radiation.


Help with the children. Babysit. Carpool. Help arrange a group of moms to carpool for sporting events, church activities, etc. Keep the children’s lives as normal as possible. As a mom of four, I want to make sure my kids are taken care of. If I know they are being attended to, I am able to recover and rest easier. This is a tremendous burden to those fighting cancer, especially with young children. My kids were 1, 2, and 6 years of age at the time of my diagnosis.
Take care of the spouse, significant other, or parent. Take them to a movie, golfing, or out for a hike. Anything, just not related to the duties of taking care of a cancer patient or children. My parents, sister, and husband took my illness very hard. I was only 30 with three small kids and they were terrified. In many ways looking back, my cancer was harder on those four than even myself.
Avoid giving items related to cancer. If they want a t-shirt, a bracelet, jewelry, or a book related to cancer, let them purchase it. Unless of course they ask for this personally. Books are personal. Some people want books with specific, concrete research. Others just want to read a book with feel good, happy stories where nobody dies. We all handle the diagnosis, treatment, and grieving differently. None of it is wrong – it’s just different.
Avoid sharing your horror cancer stories. It’s very similar to sharing your horror labor stories. Just as I didn’t want to hear about your vagina nightmares, I don’t want to hear how your neighbor died a horrible death due to cancer. These stories often invoke fear and terror rather than serving to inform them. Cancer is scary enough without adding your ‘need to know’ story.
So Martha, I really like you. And Sam loves your headband, so in her book, you are amazing! But stick to your red grocery clerk apron as a uniform and spend your time and monies directly towards a man or woman battling the disease. With that energy and heart of yours, your efforts will not go unnoticed or unappreciated. Make them those world famous chocolate chip cookies that I imagine you are famous for. I am certain you will bless a family beyond measure.
But today Miss Martha, I will not give you a dollar.
I don’t want a month. I want a cure.
My prayer is that this time next year, a cure will have been found or revealed. Then I will host a party next October and proudly wear that dusty, damn pink shirt currently folded in my closet. And if you show up on my doorstep, I will ask to borrow your headband and invite you to dance.
Blessings sweet Martha,
Jenny
P.S. And to my friends who have gifted me with pink clothes and jewelry. Don’t worry, this doesn’t apply to you. Yours is my favorite. :) "

if you want to read more of jenny's words, i encourage you to read her blog. if you want to see jenny dance with strangers in washington d.c. (which is awesome!!!), you should watch this. xo

 

Thursday, October 3, 2013

keeping up the good

your mojo is working its magic! you are on a roll...

sasha's appointment went well and she has no major long term damage to her back!! woohoo!! let the healing over the next six to nine months begin. she will be climbing mountains and riding her bike at the same time (you think i am kidding, but i am not - she is just that good) in no time.

chase's surgery also went great today, here is the update and a picture of our little warrior:
  
"Both Chaser and the MN Wild started a new season tonight. Chasers new season started at noon when he was put under anesthesia. He was in the OR until 6:10pm- Surprisingly Lisa and I remained relaxed the entire time. I'll be honest, around 5 O'clock we started wondering why it was taking so long- but we got our answer at 6:28 when Dr. Zarroug walked into the waiting room wearing a big smile. Instantly we know everything went well! He performed 3 procedures while Chase was under- moved his G-Tube, repaired his herniated belly button, and the Nissen procedure. The surgical team ran into a few challenges with Chasers operation. Apparently the robot they normally use was not functioning properly- so they decided not to use it- and Chaser has an artery that was in an abnormal position, making another obstacle for the surgical team to overcome- but they came through in nothing short of Chaser style and all went well. We are now in our own room and watching the MN Wild plug through their first game and hope to come away with an OT win. We wanted to put Chases jersey on him, but with all of cables hooked up to him, we settled for using it to keep him warm. Chase is wide awake, and letting us know how uncomfortable he is. Although he is struggling a little right now with the pain -the poor little dude hasn't had anything in his stomach or had any of his normal meds since early this morning- and not to mention he has little cuts all over the inside and outside of his stomach from the surgery.
I am sure after Chase gets a good nights rest in, tomorrow will bring
good day of healing, hopefully a more comfortable one for him. We were told we should be home Sat, but possibly tomorrow evening. Man, I forgot how much I disliked those bells and chimes they put on the O2 and heart monitor machines! :)


God is Good!"

since we are on a roll with the good vibes, i also want to ask for prayers for my friend mike. he was recently (september 10th) diagnosed with non-hodgkin's type b large cell  lymphoma and has started chemotherapy. his caringbridge site is called "mike's journey with god (with cancer, 'the devil', hitching a ride)". thinking cancer is the devil. i couldn't agree more. mike and i have that in common, i wish that we didn't have cancer in common. mike is asking for everyone he knows to send prayers to him and his and family, and we all know that you are good at sending prayers out into the world. i know mike and his family appreciate it, and so do i. mike and his wife jeanne have been kind to me, and they deserve all of the kindness we can give them.

i for one am ready for the weekend, as has been the latest trend, it has been a really long week.

but the weekend is looking good with a girls trip to the east side of the mountains for some much needed r&r. bring it on. it will also include some much needed r&r at home with my two favorite peeps. i am also hoping it brings me some much needed sleep.

i hope your weekend is good as well - you deserve it, enjoy it. xo

Wednesday, October 2, 2013

updates + books

peeps -- good news today (we love good news days). patty's scans showed that the tumor has not increased since her last appointment - yes!!! she will have her next scans in two months, and no more chemo between now and then - yes!!! love outweighing the bad with the good, let's keep it up.

i also want to ask for good recovery vibes for my dear friend sasha who took a bad fall last week on her bike and broke some pieces of her back. yes, her back. pieces broken. but luckily she is going to be ok and is the most active person i know. i have no doubt that she will be up and at it in no time and ditching that home depot brace she is wearing (tho she owns it like she was is on a runway;)). she has an appointment with a back specialist tomorrow (thursday for those of you reading this wednesday night) and we are hoping for a clear plan on recovery. good vibes, good vibes, good vibes.

chase has surgery tomorrow so send tons of prayers and mojo to the mayo clinic tomorrow.
here is the update on him tonight:
"We are anxious to get through surgery tomorrow. Chaser had a great day in therapy. Both of his therapists commented on how much he is progressing. We will keep you up dated on the surgery and his recovery. We are both confident Chaser has the best surgeon and team for the job- i know it will go Great! We have to call in tonight to find out what time it is at, but he is the third procedure, so it should be around lunch time. Thank you all for your thoughts and prayers." 

for those of you on facebook, if you follow chase's page, there was an awesome video yesterday of him rolling over - go chase go!

one of the projects that i am working on at our house is doing a refresh of this bookshelf.

 
i am going to put up some new prints (some of which i have linked to on the blog recently), and some of my favorite pictures from this year. i want this bookshelf to capture our recent moments, the ones that have made this year great. currently on the bookshelf i have some of my favorite books. but the thing about books is that they are meant to be read, not looked at. i know that i will never read them again, so they should go to someone that will open them up and turn their pages. so, if you are interested in any of the following books, let me know and i will send it your way (first come, first serve - one only per person please. marcie-roo, one means only one, not two;) xo).
have a good thursday peeps. xo

Tuesday, October 1, 2013

outweighing the bad with the good (for patty, jo, sharon, chase)

"as you grow older, you will discover that you have two hands,
one for your helping yourself, the other for helping others."
(audrey hepburn)

apparently, melanoma didn't appreciate my list of fun things that i am planning on for october. i had the worst nightmares last night. one of them was so jarring that i woke up with some small screams while trashing in bed, which rarely happens. usually i just wake up from them, but i don't wake up being so startled. i was rattled all day, could not shake the images from the nightmare. i kind of don't want to go to bed tonight, i am a little worried about what is to come. maybe i will pull an all nighter like my old college days.

so we need to combat all of that negative energy from my nightmares with some really good energy. are you in? i knew you would be.

tomorrow patty goes in for her next round of scans and results. so please send her and her family your good vibes, mojo, and prayers that the tumor has not grown. in fact, the tumor completely shrinking would be awesome so let's make that our goal. sound good? yep, sounds good to me too.

we also need to keep sending all of your good energy to sharon as she is still waiting on her blood results with her tumor markers, which we all know will be super low and basically on the negative side of zero.

my mom-in-law jo had a mole scraped today at her dermatologist, so we need send her good energy that the results are totally boring and not interesting at all. you know, the blah blah blah kind. we love those kind of results. 

chase is going in for surgery on thursday, so kick up the vibes for our little fighter, here is the latest:          
"One of the many things that our entire family has learned through this experience is how caring and generous people really are. It never ceases to amaze me the random acts of kindness that continue to come our way- and believe me, we are very humbled and thankful for all of them- especially one we received on Tuesday. The day before Lisa was going to take Chase down to Mayo to meet another surgeon, she received a call from the an assistant of the surgeon we had been corresponding with, and had the appointment on the 29th with. She had called another family, explained the situation, and asked them if they would consider switching dates with Chase so he could be operated on earlier....they said they would! Lisa wasn't give any details of the conversation that took place, but was given a new date of Thursday Oct 3rd - with the surgeon that we had met with and feel so good about! I do not know who they are, or what procedure they pushed back, but what an incredibly generous and thoughtful thing to do! So Chase will be going down either Wed night or early Thursday morning. The surgery will be a couple of hours. The plan is to have the nissen procedure done (wrap part of the stomach around his esophagus, so that the vomiting will become much more infrequent, or possibly cease all together), move his G-tube down lower on his stomach, and repair his herniated belly button. It will all be done with a scope down his throat with the only exterior incision being that of the new G-Tube placement. We are hoping for a quick recovery of one or two nights in the hospital postop.
Chaser is doing good. He continues to vomit often and unpredictably, but it doesn't seem to cause him much visible discomfort. His therapy is going good. On Tuesday, Lisa called me on her way home from his session at Burnsville with excitement in her voice. He was following commands, did a food less run with the Vital stem treatment- and had some very good swallows. But that isn't what she was excited about, it was his eyes.... In the last week, he seems to be very aware at times of what is going on. He moves his eyes around the room more, and when he does lock those brown marbles on you, you can really feel him looking at you. Yesterday as he was looking at me, you could almost see him trying to process what I was saying. We continue to use the stander every day, and get him out for his mile long trike around the neighborhood- which he seems to enjoy. We have increased his vest treatments from one to two or three a day- followed by a deep suction, to help break up the buildup in his lungs-
Tanner and Ava are doing great. They seem to have accepted this process of Chasers healing, and have been helping out a ton. Ava loves to play nurse and digs in when ever we will let her- The kids and I kicked mom out of the house on Thursday. We sent her down to AZ for the weekend with a couple of girl friends for a long overdue break! I have talked to her a few times, and she is loving it. Gramma "Judes"- as Ava calls her, came down to help out and hang out with her favorite son-in-law (even though I'm her only- she has admitted I'm her favorite :) ). We are looking forward to getting through this surgery next week- I know it is going to be a game changer! I hope you all enjoy whats left of the weekend. Thank you all for your continued support, thoughts and prayers. We really appreciate it!

God is Good!"
happy wednesday everyone, hump day is here. we are almost half way there, i can almost see friday.