Tuesday, April 16, 2013

catching up

it has only been a couple of days but it feels like a long time since i have wrote a post. hope you all have been well in the meantime.

+++ we had a great time in vegas. we got to see tim mcgraw and faith hill's show at the venetian which was awesome. thanks to my friends kerry and erin and some secret planning they did (love you girls!), we got to meet tim and faith before the show which was so very cool. here is proof. can you tell which two are more pale than the other two?;)
their show was really good, we of course completely lost it when tim sang his song "live like you were dying". that was a tough moment for sure. but we loved the show and it was such a special and once in a lifetime kind of night.

it always fun to check out the colors within the casinos, one my favorite stops being the bellagio garden. so gorgeous every time i have been there, and i love how the garden changes depending on the season of the year.




 
+++ we came home to an awesome surprise. some of our great friends, along with help from my mom and dad, spent their sunday working their tails off in our yard totally overhauling it for spring (we love you guys, thank you). our yard looks so amazing it is unbelievable. mowed. edged. powerwashed. barked. trimmed. patio furniture out. no more weeds (not even one in our entire yard). no more dead plants. gorgeous flowers in our front and back yards. new vegetables planted. so amazing. we are so lucky to be loved by so many great people. lucky, lucky us.
 

+++ thanks to everyone who has signed up for "the fun mail for chase, ava, and tanner campaign". you all rock! i will be organizing the weeks and getting back in touch with you all later this week. thanks so much, and please get in touch with me if you would like to have a week and haven't had a chance to let me know yet.

+++ i intend to get my act together this week to send out the bracelets so those of you that wanted one should see them coming your way soon. if you want one and haven't let me know yet, drop me a note and i will send one to you.

+++ thanks for all of the continued good vibes for chase, here is the latest update on our little fighter today. fight chase, fight!
"Chaser has really put up a good fight today! His fluids remained consistantly high throughout the night and into the day. With constant suctioning necessary, as well as periodic deep suctioning- which is when a long tube down is inserted down his throat to remove the secretions. Although this clears up his airway, and helps him breath easier, it causes visible discomfort in his throat, and by no means, is an acceptable, permenant solution. We continue to pray that he begins swallowing, but there are meds we can use to dry these secreations to a managable level now that he no longer has the NJ tube. His morning began with another neuro-storm, which ceased almost as quickly as it started, after we administered some pain relieving meds. It appears that following the Dr.'s game plan to treat these neuro-storms is working, and working well. His surgery went great, and his recovery from it seems to be going well. We have started him on feed again at a much lower dosage. He has been holding it down with no problems and no complications with the new tube!! He has experienced two breif neuro-storms since the surgery, and they too were calmed to a hault fairly quickly. This adds more evidence to the theory that pain is triggering the onset of these. Having the ability to control these storms, the posibility of transfering to Gillett's this week still remains. We are hoping to find out tomorrow. With Chase resting clamly in his hospital bed and Gramma Judy by his side -Tanner,Ava,Mom and I wind down a night together watching the Wild earn a much needed win over the Oilers. Although the conversation we had with the Dr. Today regarding Chases MRI results, did not vary much from the previous Drs', we both know there is a reason Chase is still with us, and we continue to trust God and his lead on this journey."

+++ i loved this post called the most beautiful education by dig this chick as it made me think about all of the great adults in malena's life and how lucky she is to be surrounded by so many wonderful people that love her so much. yep, it was a handkerchief read (i have traded in kleenex for handkerchiefs thanks to my friends doreen and charlie;)).

+++ man, scanxiety is coming on strong. two weeks from today is results day. 14 days until we know. will i get the all clear to live my life for another three months as normally as possibly with the black beast constantly in the background? will i get the results that indicate treatment needs to occur (and we all know what that means and it isn't good)? please, please, please let it be the former and not the later. please, please, please.

happy wednesday all, i hope that it is a great one. xoxo

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