Monday, October 15, 2018

results

the tumors have remained the same size, would have loved some shrinking but happy with them maintaining for now. adding a second drug back in now and then come back in a month for check-in. scans again in two months assuming no problems. keep sending the love❤️

Thursday, October 11, 2018

scan day, yep - it's that time again

first off, thanks again to everyone who contributed to kelli's fundraiser for the melanoma research foundation in john's name. the total was over $850, you all rock (i already knew that). the winner of the gorgeous cards from my friend jill was my mother-in-law jo who was super excited to get them! thank you all, mission accomplished and you made a difference for kelli and she was so excited to see that total climb.

friday is scan day for me.

i go in at 3:30 and have a ct scan first.

then bloodwork.

then a 45 minute mri. i can hear the jackhammer noise now.

we get the results on monday morning at 8:30.

so start sending all the mojo, prayers and love our way.

gloves up.

anywhere i fight, you fight.

here we go. xo

Sunday, October 7, 2018

thank you

such a huge thank you to all who contributed to the text for fundraiser for kelli's birthday.

you all rock.

we did it! we got her to her $500 mark and beyond to $780!

thank you, thank you, thank you - i knew that we could do it, and of course, we did. 

i want to make sure that i have all the names for the card giveaway and for the total for kelli.

so if you donated and didn't let me know, please let me know on monday so that i can do the card giveaway and give kelli the final number if it changes.

and please send her your love for monday as she moves through the day that would have marked their one year wedding anniversary. i can only imagine she can use every good thing we can send her way to find her way through the day.

thank you. xoxo




Friday, October 5, 2018

kelli's birthday + fundraiser for her birthday (please donate!) + card giveaway



this is kelli and john.

kelli is the awesome person that we are currently doing the happy mail campaign for as she grieves the loss of john to melanoma.

today, saturday, is her birthday. and this coming monday would have marked their one year wedding anniversary.

kelli has a request for her birthday.

to raise $500 for the melanoma research foundation.

she is currently $345 of the way there.

let's get her to $500 and make her birthday request come true.

it will raise funds for an organization that is working to find a cure for melanoma. clearly, it is a birthday request i can support.

i will be making my donation now.

if you donate, please let me know so that i can let kelli know how her total is growing.

to donate, you can go here.

also, for an additional incentive, my super talented friend jill gifted me some of her handmade cards that she paints and they are gorgeous. she told me to give them away as a giveaway on the blog, and i know that she would think that this is probably the best reason of all. if you donate for kelli's birthday, i will enter you into a giveaway to win the cards from jill.

i think that a donation for a woman who loved her husband more than we all could ever know deserves some love in return. am i right? yes, i think so.

so, let's make her birthday goal happen.

are you with me? any amount will help.

let's do this, i know we can. 

thank you. xoxo

super important update:
+++ my friend mary in wisconsin had her pet scan today and there is no melanoma anywhere else in her body. yes! she will start treatment soon so keep your fingers crossed that her side effects are minimal. she will have a port installed soon and then she will start kicking melanoma's ass. of course, i will be providing updates as she moves through the upcoming months.
+++ oh, and one other thing, f*&k melanoma.




Monday, October 1, 2018

check in day at the oncologist + good thoughts for mary

today was check-in day for me at the oncologist.

bloodwork first.

appointment second.

my bloodwork looked good but my potassium continues to be low. even after we doubled it after the last visit. that might be adding to my fatigue. so now we are doubling it again to see if that helps.

next up is scans next friday.

then comes the results on the following monday the 15th. so start sending the good vibes my way please.

the side effects continue.

my joints hurt pretty bad. some days i need the cane to walk. some days i don't. just taking it day by day. but i am pretty much hurting 24/7 it is just a question of which joints hurt the worst on any particular day.

my hair continues to fall out in clumps. my scalp is so sore even to the touch. i don't have any bald spots quite yet but it will just be a matter of time. some days i wear hats to work just because i get mentally tired of seeing my hair fall out onto my clothes even when i am not touching it.

fatigue continues to be rough. so tired all the time. there are times when i just can't keep my eyes open any longer (not when i am driving - don't worry, but at home). i pretty much want to nap all the time but life doesn't work that way unfortunately.

i also want to ask that you start kicking up the vibes for my melahomey mary in wisconsin as she goes in for her pet scan on october 5th and we need to ensure that melanoma does not show up anywhere. then she will have discussions on treatment and how to keep the black beast from coming back. so get those vibes, prayers and mojo going for her please.

sorry that i have been so quiet here. 

i never mean to and then the days roll by.

hope that you all had a good monday and your weeks are off to a good start. xo

Thursday, September 20, 2018

beth's results are in...

you all work magic.

let me have her tell you in her own words.

thank you for all of the love, prayers, and mojo you sent her this week. it worked (but we all knew that it would. right? right.)

have a good weekend all - xoxo


So the scans showed everything was stable with some minimal decrease on the nodules.  While that was not the news I wanted my doctor explained a bit more to me.  He said the nodules are so small he doesn't actually expect them to disappear.   What we hope will happen is that the cancer will die in the spots but the spots will likely remain because of scar tissue.  So in some ways you have no way of knowing if that is happening except when I go off treatment if I don't get any more spots it means the cancer was killed.  So now I guess that is what we root for.  My doctor seemed pleased and not surprised.  So i'll take it as good news.
   My labs all looked good so once again I celebrate by going to infusion.  I am in my room now waiting for them to start.  My neuropathy had been flaring up so my doctor is dropping the oxaliplatin.  That will make my infusion appointments shorter, I should feel a bit better, I will drop the cold sensitivity (ice cream here I come!) and my neuropathy won't get worse and hope it gets better.
     And hopefully it will help with the fatigue because it's a harsh drug.  My doctor is calling this maintenance chemo.  There is always the chance I have to go back on the Oxaliplatin but we all hope that is not the case.

   The other drug continues to fight my hair and now my eye lashes are falling out.   I hate this side effect.   After the wedding I may cut my hair shorter.  But still use a hair cap.
    
   I have been really tired, probably because I am a bit overwhelmed with things.  I had people in town last weekend for my wedding shower which was so much fun.  Wonderful to have people I love all in the same room. I  had to pack up my office because we are moving spaces this weekend, I have a lot going on at work and things to do and we have wedding plan details.  So it's a lot right now and I am just tired.  I will keep it low key this weekend with probably lots of sleep.
   An update on Alli.   Her blood work looked good earlier this week.  She will remain on her dosage of drugs until her scans in October then will reassess.    She continues to have a lot of fatigue herself.
   I also have to bring up another friend's husband, Scott.  He is now on a heavy dose of chemo and needs all our support and prayers as well for a great outcome from his treatment.
   So thank you for your love, support and prayers for all of us cancer fighters.

Wednesday, September 19, 2018

send beth all you've got for thursday

beth get her scan results tomorrow (thursday) so send her everything you've got.

she gets results at 1pm pst so you have most of the day to send the love (of course you can keep sending it after that time as well;))

i will be watching my phone like a hawk to see what the update is - knowing it can only be good news for this girl who gets married in less than two months to an awesome man.

so send everything you've got her way and i will let you know how things turn out.

thank you from me and beth.

gloves up for beth.

xoxoxo