Wednesday, February 21, 2018

treatment day and playing the cards you are dealt

"you don't have a right to the cards you believe you should have been dealt.
you have an obligation to play the hell out of the ones you're holding."
(cheryl strayed)

another treatment day in the books.

bloodwork was good, potassium continues to stay low but i am taking potassium every day to try and fight that so hopefully it starts swinging upward again.

today was bloodwork, doctor's appointment and late infusions and so we didn't get home until about 8:30 and we went in at 1. long day. but they all tend to be when it is an infusion day.

i slept through most of the infusion and my hour afterwards that i have to wait to ensure no reactions. usually i am awake and talking to barrett or doing something during the time but i just couldn't keep my eyes open this time. you can probably get a sense of how tired i am as those dark circles around my eyes pretty much make me look like a raccoon.

which is part of the reason that we likely forgot to get my trial meds from the pharmacy and realized that when we were almost home and the pharmacy at scca (only place i can get my meds) was closed. so guess what i am going to be doing first thing tomorrow morning? yep, seattle here i come again. oh well, shit happens - i had to miss a dose tonight when i ate when we got home but i will get right back on it tomorrow.

thanks for all of the love and support i am getting in a million different ways, i really appreciate it.

thank you also for all of the vibes you are sending to my friend lisa as she starts her daily radiation treatments this week. if you told me you want to be part of the happy mail campaign for lisa, you will be hearing from my friend kerry shortly who is helping me to get lisa's happy mail campaign rolling and underway (and thanks to my other volunteer campaign manager for offering, love you for that - you know who you are. xoxo). if you still want to participate, more info is here.

anywhere i fight, you fight.

and we keep on fighting. 

one more round of infusions and then i go in for scans again in march to confirm if i can stay in the trial (let's all cross all of our fingers and toes until then). i am not going to say much more about that tonight as it won't help my anxiety or my ability to try and get any sleep tonight. but more to come for sure.

have a good thursday, it is almost tgif.

i have to end this post now as it is 13 minutes after ten and my big brother is going to be mad at me for not being asleep;)


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