Sunday, December 4, 2016

beth + kim + those damn joints

thanks for all of the love and good vibes for beth and kim last week.

beth got her results on friday, and while they were not the all clear we wanted, they weren't the worst news she could have got either.

i will let her tell you in her own words because it is her story.

well I still have spots and they are still growing.  Albeit slowly.  So the fact that they are growIng my radiation oncologist wants me to come back for another scan in 3 months.  He knew I wasn't going to like that news.  I did cry.  
We still don't know what the spots are.  They are still half the size of what they would need to biopsy which is 1 cm.  
He said they aren't acting likely a typical cancer because they are growing so slow.  But it doesn't mean they aren't cancer.   
I did also ask about the construction at my place and since there is mold there If it could be fungal.  He said it was plausible and seemed intrigued with all the construction at my place.   He is going to ask some pulmonary specialists and let me know.  

I didnt think the lung spots would be gone but assumed I would stick with a 6 month scan.  So I am not happy but we still don't know what it is. I promised him I wouldn't live the next 3 months like it's cancer doomsday.   Because we just can't.  
In some ways I never want the spots to be big enough to biopsy.   But there is a chance I have to have scans longer than 5 years and may live for a long time wondering what these spots are with no definitive answer.

all labs looked good which is a good sign.  
We are on our way to Vancouver and I will try to enjoy myself and live the next 3 months like I planned on anyways.   (I am not going to lie that I am very disappointed however)

On a good note my very great repairman came over last night and all is fine with the oven.   

I couldn't do this without you.  Thank you all for your ongoing love, support and prayers.

so please keep the good mojo going her way so that those spots stay right where they are over the next three months, or even better, shrink!

kim had her MRI on friday, and she meets with the surgeon tomorrow to talk about the results and next steps. so please send love, prayers, and all of your good mojo to her tomorrow morning as she learns more about what comes next and when.

as was to probably be expected, my joint aches have got worse since the latest infusion on monday. i was sore on saturday but was doing fine. then by saturday night, my joints hurt so bad that i was in tears. i took some advil to try and get some sleep during the night. my kind husband woke me up at 5am so that i could take an advil and get ahead of the pain for the day. i had a sauna appointment and a fun afternoon planned with friends. i had cancelled both of those plans by 8am because i was in so much pain. i had to have barrett come up and help me get out of bed because i couldn't put any weight on my arms to leverage myself up.

so it has been a rough 24 hours. but the advil has helped a small bit to numb the pain.

i hate having to cancel plans. it feels like throwing up the white flag. but tomorrow is a new day, and hopefully there won't be a need for me to throw up the flag again.

so we will see how tomorrow goes.

one hour, one day at a time. that is what i keep reminding myself.

thanks for all of the love that you are sending my way as well. as always, i really appreciate it.

happy monday.

here we go again. xo

+++ for all the local peeps, there is a great holiday pop up shop at the historic shell station on front street in issaquah, more info is here. and the christmas cabin is open at timber creek in redmond and more info is here. you are welcome.

1 comment:

  1. Sending lots of super healing vibes and tons of ❤️

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