Saturday, December 22, 2018

Hospital Update

Last night (Friday night) was not a good night.  At 3:30am Alli had a seizure that lasted about 10 minutes.  She was feeling nauseous and the nurse and I had just sat her up when she started to have the seizure.  Her body straightened out as her muscles locked up.

She was essentially non-responsive for the next 3.5 hours until she started opening her eyes again about 7am.  She has been opening her eyes off and on since then but is mumbling what words she does try and speak.  They had scheduled a special Saturday radiation (normally its just Monday thru Friday) to make up for the one that she missed on Thursday to try and keep her on schedule and get through what we hope are the side effects as fast as we can.  They took her down for the radiation treatment this morning but because of the seizure she isn't cognitive enough to lay still and not grab her head where the radiation is going.  They had to call off the treatment because it just wasn't safe for her to be grabbing at her head while they are sending radiation to her brain.

We are waiting to talk with the neurology team today to get a little more info about the plan moving forward for treating the seizures and why she had a seizure last night.  For her radiation we will talk with the radiation oncologist on Monday to see if we end it at 8 doses of radiation (don't do the radiation on Monday), 9 doses (do radiation on Monday and then stop), or if extend it to have a treatment on Christmas day or the day after to get the full 10 doses.

Need a few more prayers that she can recover from these last two seizures and the symptoms she has been having start going away as we take a break from radiation.

Where ever she fights you fight!

3 comments:

  1. Sending more than a few prayers Barrett! We love you guys!

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  2. wherever she fights, I am fighting for you, too.   prayers...

    scarlett

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  3. Just sending so much love and prayers. I am fighting and praying for you. Love you.

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