alli's equilibrium

today has been a long day. we had a series of appointments this morning. bloodwork. medication reviews. doctor appointment. nutrit...

it is 5am friday and i have been awake pretty much all night. i could not get back to sleep after the 1:30am tube clearing. then the ala...

this has been a long week and it is just tuesday. sunday night my feeding line got an obstruction in it somehow so we ended up going to ...

our weekend was low key. stuck pretty close to home for most of it. i did get out a little bit to a shop and to do some girl scout cooki...

"experience: that most brutal of teachers. but you learn, my god do you learn" (c.s. lewis) we are tired. exhausted is probab...

The hospital stay is over.  Its been a long day and we're both ready for bed so we'll update more later but wanted to share the news...

i am going to do a short update tonight, and as you can tell (no caps) this is me writing. my super guest blogger is getting a night off whi...